April Resource Meeting (via Zoom): Supported Decision Making with SDMPA
Apr
29

April Resource Meeting (via Zoom): Supported Decision Making with SDMPA

Are you confused about what legal terms like guardianship, power of attorney, or health care representative mean? Are you looking for a way to create a network of support for yourself or your loved one without sacrificing legal rights? Join us for our April Resource Meeting. Our guests will be representatives from Supported Decision-Making Pennsylvania (SDMPA), a team from the Lehigh Valley that has been working on a project to share information about Supported Decision Making.

From our presenters:

“Recent data indicates young adults with intellectual and developmental disabilities (ID/DD) ages 18-22 are being funneled into guardianship because of school districts primarily advising parents of this option without explaining the potential lasting implications. Guardianship is a “legal process where a court removes some or many of the legal and decision-making rights from an individual and transfers them to another person called a guardian.”As a result, overbroad and undue guardianships occur, taking away more rights than necessary, denying self-determination of individuals with disabilities and in turn significantly impacting quality of life. Supported Decision-Making, an alternative to guardianship, allows people with disabilities to establish a circle of support that empowers them to make decisions to achieve and maintain independence. 

Supported Decision-Making Pennsylvania (SDMPA), created through a partnership with Lehigh Valley Center for Independent Living (LVCIL) and Jewish Family Service of the Lehigh Valley (JFSLV) will serve transition age youth with disabilities and their families. While both organizations provide services and programs in the Lehigh Valley, SDMPA will allow the agencies to expand their reach and serve individuals and organizations throughout the Commonwealth. This grant is funded by PADDC. “

 
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Peer-To-Peer Workshop (via Zoom)
May
7
to Jun 4

Peer-To-Peer Workshop (via Zoom)

In this unique 5-session workshop series, you will learn from peer instructors who are living on their own.

You must register in advance to attend this workshop, and your registration fee covers all 5 sessions.

This round of the Peer to Peer workshop will meet every Tuesday from 7:00pm - 8:00pm from May 7th-June 4th, 2024

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May Resource Meeting (via Zoom): Understanding Benefits  with Michele Leahy
May
20

May Resource Meeting (via Zoom): Understanding Benefits with Michele Leahy

You have the waivers, the special needs trust, the benefits, Now What? 

In this presentation, our guest presenter Michele Leahy will will talk about SSI/SSDI to DAC transition, how to revise ISP plans, how to organize all the information in one place and, importantly, how pass the baton to the next generation. 

Her presentation will cover how to navigate services when life changes and how to deal with the stumbling blocks of changes in benefit status. She’ll also explain how to organize your plan and bring the next generation "up to speed" to start the succession now.

About our presenter:

Michele Leahy, MS, CPWIC, is the founder and CEO of Leahy Life Plan, a firm dedicated to long-term life planning for those with disabilities. She understands disability challenges from both a professional and personal perspective.

In 2009, Ms Leahy obtained her Certification in Work Incentive Planning through an approved Social Security Administration (SSA) program established through the SSA Ticket To Work Program. She has an M.S. in Non-Profit Management from Eastern University. In 2023 Governor Shapiro chose Ms Leahy for the PA Employment First Oversight Committee. Ms. Leahy was the first non-veteran Executive Board Member of the United Spinal Association, a national disability rights organization.

Ms. Leahy has spoken both nationally and locally on disability, including at the National Down Syndrome Congress Conference. In 2018, she spoke on disability issues at the Philadelphia Women’s March on the steps of the Art Museum. Ms. Leahy’s commitment to cross disability has led her to being involved with visible and hidden disability organizations.

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Independence Happy Hour (on Zoom)
Jun
19

Independence Happy Hour (on Zoom)

Calling all peer to peer Instructors and former participants!

Join us to socialize, make connections, and discuss living more independently.

This is a one-hour virtual get-together for anyone who has participated in any of our past Peer to Peer workshops.

Whether you joined us in Summer 2021 or Winter 2024, we’d love to see you! Click on the button below to register, or contact abby with any questions.

This event is for people who have completed our Peer to Peer Workshop.

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Empowering Independence  Workshop (via Zoom)
Jul
11
to Aug 8

Empowering Independence Workshop (via Zoom)

What does Independence look like for you? Spend some time with us to identify your strengths and work on your plan for the future! Our results-oriented framework will help you create an action plan, understand what independence means for you, and start crafting a vision for the future. You must register in advance to attend this 5-session workshop, and your registration fee covers all sessions.

Throughout our 5 weeks together, you can expect to meet other families, learn concrete skills, and solidify your independence vision! This cohort will meet every Thursday from 7:00-8:15pm from July 11th-August 8th, 2024.

Special Early bird enrollment discount available now through 6/27!

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Peer-To-Peer Workshop (via Zoom)
Sep
10
to Oct 8

Peer-To-Peer Workshop (via Zoom)

In this unique 5-session workshop series, you will learn from peer instructors who are living on their own.

You must register in advance to attend this workshop, and your registration fee covers all 5 sessions.

This round of the Peer to Peer workshop will meet every Tuesday from 7:00pm - 8:00pm from September 10th-October 8th, 2024

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Independence Happy Hour (on Zoom)
Oct
9

Independence Happy Hour (on Zoom)

Calling all peer to peer Instructors and former participants!

Join us to socialize, make connections, and discuss living more independently.

This is a one-hour virtual get-together for anyone who has participated in any of our past Peer to Peer workshops.

Whether you joined us in Summer 2021 or Fall 2024, we’d love to see you! Click on the button below to register, or contact abby with any questions.

This event is for people who have completed our Peer to Peer Workshop.

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Getting Your Own Place: Myths and Facts
Apr
18

Getting Your Own Place: Myths and Facts

Join this Zoom session to learn about Housing from SAU1 Power coaches! The Power Coaches will share some common myths about housing for people with disabilities, and then help to replace these myths with facts. This presentation is designed for older teens and adults with disabilities, their families, and the professionals who support them. To learn more and to register, please use the button below.

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Getting Your Own Place: Myths and Facts
Apr
17

Getting Your Own Place: Myths and Facts

Join this Zoom session to learn about Housing from SAU1 Power coaches! The Power Coaches will share some common myths about housing for people with disabilities, and then help to replace these myths with facts. This presentation is designed for older teens and adults with disabilities, their families, and the professionals who support them. To learn more and to register, please use the button below.

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Community Event: 17th Annual Gwynedd Mercy Autism Conference
Apr
6

Community Event: 17th Annual Gwynedd Mercy Autism Conference

Join Families CCAN and many other presenters at the 17th Annual Autism Conference at Gwynedd Mercy University. The conference is free to attend, and provides over 20 workshops covering a wide variety of topics by leading professionals.

Visit their website to learn more and to register: Gmercyu.edu/autism-institute/#conference

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Delaware County Meet-up (In person!)
Apr
4

Delaware County Meet-up (In person!)

Calling all Delaware County residents!

If you are an Individual with disabilities or a family member of an individual with disabilities and you live in (or close to) Delaware County, join us for an opportunity to: 

  • Make new, local connections

  • Share resources and information on supports, services and employment opportunities

  • Find others who are looking for solutions for planning, building community and housing

Our Spring DelCo meetup will take place In Person in Springfield, PA.

In addition to our regular discussion, we will spend time getting to know each other over table-top games.

Please feel free to bring your favorite table-top game to share with the group!

Click below for more info and to RSVP:


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March Resource Meeting (via Zoom): Getting Your Own Place: Myths and Facts
Mar
18

March Resource Meeting (via Zoom): Getting Your Own Place: Myths and Facts

Join us to learn about Housing from Self Advocates United as One (SAU1) Power Coaches!

For the past several months, Families CCAN and SAU1 have been working on a grant project . This project is funded by the Pennsylvania Developmental Disabilities Council. To learn more about this project, click here.

This presentation will share some common myths about housing for people with disabilities, and then help to explain why those myths are not true. This will be an informative and interactive presentation geared towards older teens and adults with disabilities, as well as their families, and the professionals who support them.

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Independence Happy Hour (on Zoom)
Mar
13

Independence Happy Hour (on Zoom)

Calling all peer to peer Instructors and former participants!

Join us to socialize, make connections, and discuss living more independently.

This is a one-hour virtual get-together for anyone who has participated in any of our past Peer to Peer workshops.

Whether you joined us in Summer 2021 or Winter 2024, we’d love to see you! Click on the button below to register, or contact abby with any questions.

This event is for people who have completed our Peer to Peer Workshop.

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Improvathon 2024!
Feb
24

Improvathon 2024!

 Join Families CCAN and JCHAI for an exciting afternoon of community-building, fun, and improv! Attendees will have the opportunity to participate in improv skits and games, as well as make suggestions for the improv shows.

Suggested donation: $15 per person, at the door or through this link. All funds raised will directly benefit JCHAI and Families CCAN.

Advance registration is encouraged but not required. Complimentary refreshments provided.

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January Resource Meeting: Planning for Financial Security (via Zoom)
Jan
22

January Resource Meeting: Planning for Financial Security (via Zoom)

Feeling overwhelmed by the prospect of financial planning for yourself and your loved one? Join guests Brian and Sean Sykes of Sykes Financial Solutions to learn about new tools and strategies to make sure that you can continue to live your best lives in the future. They will bring their presentation, “Special Plans for a Special Life”, which covers:

  • 3 Key Resources for Financial Security

  • 4 Crucial Financial Areas of Focus in Special Needs Planning

  • Special Needs Trust Overview

  • The Living Balance Sheet: a new Tool in the Financial Planning Process.

About our presenter: Brian Sykes, CFP®, ChFC®, ChSNC®, CExP™; is a financial professional with more than 19 years of experience in the financial services industry. He specializes in providing financial planning and business consulting services, focusing on a holistic approach that addresses clients’ entire financial pictures, from their current circumstances to their long-term goals. His clients include individuals, families, executives, and owners of closely held businesses. Wherever they are in life or the financial planning process, he believes it is critical to educate clients on their opportunities and explain the reasoning behind his recommendations. By doing so, he strives to help clients feel confident in their future and more empowered to make decisions and take an active role in their financial strategies.

This meeting is free to attend and all are welcome. Registration is required.


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Independence Happy Hour (on Zoom)
Dec
6

Independence Happy Hour (on Zoom)

Calling all peer to peer Instructors and former participants!

Join us to socialize, make connections, and discuss living more independently.

This is a one-hour virtual get-together for anyone who has participated in any of our past Peer to Peer workshops.

Whether you joined us in Summer 2021 or Fall 2023, we’d love to see you! Click on the button below to register, or contact abby with any questions.

This event is for people who have completed our Peer to Peer Workshop.

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November Resource Meeting (via Zoom): Creating Community-Based Housing
Nov
20

November Resource Meeting (via Zoom): Creating Community-Based Housing

Community-based housing opportunities for adults with disabilities can be hard to find. Join us on November 20th as we discuss community-based housing solutions. Our guest, Bill Meltzer, will share lessons he has learned as a member of The Housing Initiative, a parent-driven initiative to create an affordable and inclusive housing solution for individuals with Intellectual and Developmental Disabilities (IDD) in Allentown, PA. The Housing Initiative has created a plan for an inclusive apartment building. Their building project is now underway, and will offer affordable community-based housing opportunities to adults with and without disabilities. Check out news about the project here and here.

About our presenter:

Bill and his wife of 39 years, Anne Marie Dolinish-Meltzer, have three adult children and a grandson. Their oldest son has Down syndrome. Bill has been engaged in advocacy activities for people with disabilities since 1999, when he co-founded the Eastern Pennsylvania Down Syndrome Center (EPDSC), a non-profit 501(c)3, whose mission is to provide medical evaluations for individuals with Down syndrome in a family centered environment.

Bill also has experience as a Special Olympics basketball coach, Pantry manager and Board member for the Whitehall Coplay Huger Initiative, and Board member for Alliance for Building Communities (ABC), a local non-profit whose mission is to create community partnerships dedicated to revitalizing neighborhoods by developing safe and affordable housing that fosters independent living and enhances quality of life for seniors and families.

Bill provided this background on the Housing Initiative:

“As with many grass roots initiatives, it began when our children were born. As you are likely aware, advocacy does not come without obstacles. We advocated for their education in a classroom with their peers. We helped develop a three-year post-secondary education program at East Stroudsburg University. We advocated for their inclusion in the community, and we advocated for competitive employment. But have you ever wondered where your son or daughter would live when they become an adult? These issues and questions are hard enough for our “typical” children. But what about those that have an intellectual disability?

In September of 2014, the Eastern Pa Down Syndrome Center charged a small group of parents to come up with a creative living option that would allow our adults with intellectual disabilities to live independently in their community. This group along with others from the autism community came to be known as The Housing Initiative or THI.”



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One Stop Workshop: Building Community Connections (via Zoom)
Oct
25

One Stop Workshop: Building Community Connections (via Zoom)

Our new One Stop Workshop Series provides focused instruction on small but important topics. These topics will help you on your journey to greater independence.

Join us for our second session: Building Community Connections

What a dream it would be if we could all have a place in our community where "Everybody knows your name." As we've all experienced, building these connections in our community involves more than just showing up.

Join this 75-minute Zoom session to map out the community routines, roles and relationships that can help you become a more connected member of your community. We look forward to exploring new strategies to help encourage your relationships to blossom.


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October Resource Meeting (via Zoom): Making the Arts More Inclusive
Oct
23

October Resource Meeting (via Zoom): Making the Arts More Inclusive

Would you like to learn about inclusive and sensory-friendly Arts opportunities in the Philadelphia Region? Join us on October 23rd as we welcome representatives from cultural institutions committed to welcoming and including all community members.

About our presenters:

Bailey Gamberg, Educator of Adult and Community Programs at the Brandywine Museum of Art in Chadds Ford, PA, will join us to share more about their sensory-friendly programs. Four times a year, the museum invites people on the autism spectrum and their families to experience art galleries in an immersive and low-stress environment. Along with specialized hours for minimal crowds, these programs feature multi-sensory gallery stations, craft activities, sensory break areas, and pre-visit materials. Learn more about some of the fun themes and activities from previous events, and upcoming dates for your family to join us.

Mark Sylvester and T.J. Sokso will join us from the Walnut Street Theatre. Through their Access to Walnut program, they are committed to making live theater accessible to everyone in our community.

Mark Sylvester, the Walnut Street Theatre’s Managing Director is proud to be celebrating his 30th season at the Walnut. His extensive career has spanned Summer Stock to Broadway as an actor, stage manager, box office treasurer, theatre manager, marketing and public relations director and general manager. After several years working with commercial theatre, he has devoted his career to non-profit theatre companies since 1987. To date, Mark has been associated with more than 500 stage productions.

T.J. Sokso is Walnut Street Theatre’s Director of Education and oversees the Theatre School, Touring Outreach, Residency Programs, Disney Musicals in Schools, Camp Walnut, Adopt-a-School programs, and WST for Kids Series. He has spent the past fifteen years working for the School District of Philadelphia as a CAPA Specialist. His experience includes over 100 productions as an actor/director and seventeen years of teaching in the Walnut’s Theatre School.

Walnut Street Theatre is America’s Oldest Theatre and the most popular theatre company in Philadelphia. As a producer of live theatre, many of the artists on the stage, in the orchestra, and behind the scenes are from the Philadelphia area. As a non-profit institution, the Walnut is recognized nationally for bringing affordable theatre and diverse stories to more subscribers than any other theatre company in the world. In addition to its five Mainstage productions, the Walnut’s education and outreach programs bring live theatre to over 125,000 students, teachers, parents, and kids every year.

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